Episode 36: February 20, 2019 - Raising Awareness for ALS: A Conversation with INS 2019 Keynote Speaker Nancy Frates
Attending INS 2019? Listen to a preview of this year’s keynote speaker, Nancy Frates as she shares her personal experience with ALS.
On March 13, 2012, Nancy’s 27-year old son Peter was diagnosed with amyotrophic lateral sclerosis (ALS). Her family’s world changed in an instant. They were told that there is no treatment or cure and the prognosis was 2 to 5 years. Since that day, Nancy has immersed herself in the ALS community as an advocate and thought leader. During the past 7 years Nancy has traveled and networked to the offices of CEOs, senators, congressmen, top doctors and governmental authorities. She has testified in Washington, D.C. on Capitol Hill, at the White House, and to an FDA panel regarding important issues affecting the ALS community. Nancy has developed strong relationships with executives at both the local and national levels of ALS organizations involved in research, patient support, advocacy, and fundraising.
In August 2014, Nancy’s son Peter along with their family and supporters inspired the ALS Ice Bucket Challenge to go viral, raising $220 million for the ALS Association and its global partners. During that August and the months following, Nancy has been interviewed by numerous domestic and international television, magazine and web media outlets. She also began speaking at many events both domestically and internationally, to inspire others with her family’s story and to continue the momentum created for their cause, ALS.
Nancy holds a business degree from Boston College and an honorary Doctorate in Humane Studies from Endicott College. During her 14-year career at Keller Williams, Nancy was a top agent in her Market Center serving on the ALC and working on many committees throughout her agent career. She also held positions in the Beverly Market Center as the productivity coach, team leader, and lead trainer.
She currently serves on the Board of Trustees at Endicott college. Her “Ted Talk,” program on Ted.com, has been viewed over 1 million times and her corporate, inspirational speaking has taken her all over the world including Mumbai, Austria, Sweden, and Australia.
Guest: Nancy Frates, INS 2019 Keynote Speaker
Amyotrophic lateral sclerosis (ALS), a progressive neuromuscular disease, affects 30,000 people in the United States where at least 5000 new cases are diagnosed each year. Individuals with ALS are now living longer primarily due to new research, promising treatment, and disease advocacy initiatives. Listen in as Nancy Frates, INS 2019 keynote speaker, shares her personal family story and experience with ALS. Nancy is a dynamic individual who, with her family, has raised awareness for ALS exponentially both nationally and internationally.